“Bilang magulang at bawat magulang ay kailanma’y hindi naghangad ng hindi mabuti para sa aming/kanilang mga anak. At higit sa lahat, ang magulang mas nanaiisin pang sila ang magpasan ng pagsubok ng kaniyang anak huwag lang makitang nasasaktan o nahihirapan ang anak. Parents will do everything for their children.”
A few weeks ago, I had a worth to share conversation with Sepjo Balbino, President of Pinoy Aspiring Runners. He talked about their upcoming charity fun run to be organized under his team. The event dubbed as Baby on Track, a benefit run for baby Shaila happening on June 26, 2016 at CCP Grounds, Pasay City. During our discussion and noted the initial details of the event the emotion that hovers to me that time was more than a runner or blogger, but as a FATHER. It’s pitiful to think that nowadays numerous diseases are rising. Moreover, it becomes extant to any age and even in the children.
At an early age, the adorable and cheerful 8-months old Baby Shaila was diagnosed with Biliary Atresia. It’s an uncommon disease for some, but we must be mindful of this rare disease of the liver and its causes.
What is biliary atresia?
Biliary atresia is a rare disease of the liver and bile ducts that occurs in infants. Symptoms of the disease appear or develop about two to eight weeks after birth.
Cells within the liver produce liquid called bile. Bile helps to digest fat. It also carries waste products from the liver to the intestines for excretion.
This network of channels and ducts is called the biliary system. When the biliary system is working the way it should, it lets the bile drain from the liver into the intestines.
When a baby has biliary atresia, bile flow from the liver to the gallbladder is blocked. This causes the bile to be trapped inside the liver, quickly causing damage and scarring of the liver cells (cirrhosis), and eventually liver failure.
By reading the information about the disease, from my position as a father this is truly moving and heartbreaking. But, getting word through the eyes of this young warrior expresses a filled of hope and love.
Baby Shaila is knocking on your loving heart and asking for your generous support for her upcoming benefit run on June 26, 2016 at CCP Complex, Pasay City. The event aims to raise funds for her liver transplant operation as soon as possible. Thus, we are inviting you to join the run and help save Baby Shaila from this deadly disease.
Baby on Track
June 26, 2016
CCP Complex, Pasay City
10k – Php 650
5k – Php 550
3k- Php 450
REGISTRATION WILL START ON MAY 5, 2016
– SM Mall Of Asia
– SM Megamall
– SM North Edsa
GARMIN 3rd Floor Glorietta 5, Makati City
They are also accepting donations!
Photos by Sepjo Balbino.